I have to wonder sometimes at the
audacity with which we are judged by others. Of course it happens to us each
day and we are even guilty of it ourselves but nowhere can it be more alarming
then when we feel our children’s very lives judged because they are severely
disabled. As a parent providing round the clock care for my son for over fifteen
years there are many constants in what has become our tiny, nearly hermetic
life. Unfortunately judgment is one of them.
A blog concerning the life of an extremely disabled child, his father and the poetry of that life
December 29, 2014
I, the judge
This post was originally planned for publication here on the 18th of November 2013 as a farewell to blogging. I offered it as a guest post to 'Bloom' blog where it was released in somewhat simplified form. Here is the original entry.
November 09, 2014
The narrow passage
Each
moment with Segev is special to me, though I find my mind wandering more
often to fantasies of an easier life, mostly as I drive to house calls, trying to provide pain relief for others as physical therapist.
I feel
gutted that these fantasies don’t include my son. I don’t dream of taking him to the park, to
the beach or to visit a local ice cream parlor. When I fantasize about traveling, of going on a vacation, I don’t imagine taking him with me, to look
at the sites, visit friends or family, as though i would be carefully watching his wonderment at the
diversity of experiences to be had.
October 27, 2014
The night air
Do you know what I discovered tonight? That you
can love someone so much that, as they are suffering deeply, you hold yourself
back in fully living that love and the realization hits you that it is because
of the fear that your love is somehow inadequate.
Anthology of poetry
The expanded, second edition of the Anthology of poetry is now available for purchasing online.
October 02, 2014
August 24, 2014
August 01, 2014
July 12, 2014
July 01, 2014
May 28, 2014
May 16, 2014
April 23, 2014
Collected works of poetry on severe disability
The new book is available! The anthology of poems is a labor of love, sweat and tears and
I would appreciate everyone's support since this directly helps with the caring for Segev.
The book can be purchased here ( preferred) or on Amazon.
The book can be purchased here ( preferred) or on Amazon.
March 08, 2014
February 24, 2014
February 22, 2014
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